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Webinar: Educational Considerations for Students with Usher Syndrome

Please join the National Center on Deaf-Blindness (NCDB), Usher Syndrome Coalition and The National Family Association for Deaf-Blind (NFADB)  for an open, genuine, and powerful 90-minute presentation and discussion focusing on children with Usher syndrome. Family Engagement Coordinators Carly Fredericks and Patti McGowan, both parents of children with Usher syndrome, along with Nancy O’Donnell, Director of the [...]

Usher Syndrome Espanol

¿Es esto Síndrome de Usher? “Ella usa audífonos, pero su audición parece empeorar. Últimamente ella padece dolor de cabeza cuando lee. A ella no le gusta salir cuando está oscuro. ¿Tiene esto alguna relación? “Él es una persona sorda, ¿explica esto sus problemas de equilibrio? El prefiere no salir y los niños se burlan porque [...]

Video: Usher Syndrome

Changing Vision, Changing Hearing: Is It Usher Syndrome? "She wears hearing aids, but her hearing seems to be getting worse. Lately, she gets headaches when she reads. She doesn't like to go out when it's dark. Are these things related?" "He's deaf, but does that explain his balance problems? He runs into doorways, and [...]

9th Annual USH Connections Conference, July 2017 (OLD)

Join us for our 9th annual USH Connections Conference (formerly the Usher Syndrome Family Conference)! This one-day annual event is the largest gathering in the Usher syndrome (USH) community. It's an incredible opportunity to learn the latest on the developing treatments for USH from leading researchers, while connecting with others in your USH family. [...]

Video Topics

Security & Discovery Circles of Exploration Building Concepts for Orientation and Mobility Experience Books Hand Under Hand Likes/Dislikes Resonance Board Routine-Based Learning Social Interaction with Peers Space for Active Learning Usher Syndrome Cochlear Implants FM Systems Hearing Aids

Glossary of Terms

Commonly referenced medical terms: Oculocutaneous albinism is a group of conditions that affect coloring (pigmentation) of the skin, hair, and eyes. Affected individuals typically have very fair skin and white or light-colored hair. Cerebral palsy is a group of permanent movement disorders that appear in early childhood. Signs and symptoms vary among people. Often, symptoms include [...]


The Washington State School for the Blind Washington State Braille Services provides various types of transcription work Visit their website or Download the flier Washington Talking Book and Braille Library Library programs and services for children that cannot access standard print Washington State Department of Services for the Blind Services building towards independence [...]