CHARGE Syndrome Foundation

Families of children with CHARGE syndrome have one more way to connect, thanks to Scott Lynn, Wenatchee area and Megan Garrison, in SW Washington. They each stepped forward to be a WA State Liaison, supporting families on the journey.  Download a copy of Scott’s WELCOME LETTER.

See the map, where Washington is now green!

Visit the CHARGE Syndrome Foundation website for resources, information and webinars

Upcoming Webinar:

December 4, 2019
Using Photos to Tell Your Child’s Story
8:00 p.m.- 9:30 p.m. EST

Presented by: Donna Carpenter – Kentucky DeafBlind Project

Learn how using 20 photos to tell your child’s story to his/her educational team can provide a valuable perspective of your child as part of a family. Combining photos into a short digital video will provide the educational team with information about your child’s strengths and preferences, who your child’s favorite person is, what pets are at home and family vacations, etc. Change your child’s educational team’s perspective from a “can’t do” to a “can do” mindset.